“There is immeasurable strength in numbers”
Zambian Network for Sickle Cell Disease Amplified Voices Advocacy (ZNSAVA) is a Not-for-Profit Organisation ,which obtained its registration on the 14th December 2021 here in Zambia.
This initiative was birthed out of “utter passion” by a group of individuals who have all been impacted by the effects of Sickle Cell Disease, either directly or indirectly.
The organization has a cross section of highly experienced individuals; from People living with Sickle Cell Disease (WARRIORS), Care Givers, Clinicians ,Medical Professionals and Trait Carriers. ZNSAVA is committed to supporting people living with Sickle Cell Disease(SCD) ,their families and their communities at large.
The organizational strategy is to work in all 10 provinces of Zambia ,with a deliberate focus on the regions outside of Lusaka Province and Lusaka the capital of Zambia. This is to bridge the gap in the availability of opportunities , resources and information required in the rest of the country ,especially in Peri-Urban and Rural areas.
OUR MISSION
ZNSAVA’s Mission is
To be an effective and action oriented national key organisation, advocating for quality healthcare, leading to improved quality of life for those impacted with Sickle Cell Disease.
We shall also be a connector for Regional and Global Sickle Cell Disease Networks
OUR VISION
ZNSAVA’s Vision is
To be an effective and action oriented national key organisation, advocating for quality healthcare, leading to improved quality of life for those impacted with Sickle Cell Disease.
We shall also be a connector for Regional and Global Sickle Cell Disease Networks
OUR CORE VALUES
ZNSAVA has 5 Core Values:
Empathy
Passion
Integrity
Respect
Reliability
OUR OBJECTIVES
ZNSAVA’s Vision is:
- To raise awareness about Sickle Cell Disease .
- To create and provide reliable support networks and to engage Government and Policy makers.
- To sensitize the public on the importance of Blood Donations to Save Lives.
- To lobby for availability of Point of Care Testing Equipment in ALL Health Care facilities across the country
- To participate in Sickle Cell Disease related Rsearch and Development and Novel Therapies.
Featured Causes
Sickle cell Disease in Zambia
Sickle cell disease (SCD) is a blood disorder that results from inheriting an abnormal hemoglobin from both parents. “We usually refer to people with SCD as warriors because they are fighters who never giver up”. Hemoglobin is a protein in…
EDUCATIONHOPE Brief SCD Epidemiology in Zambia.
The prevalence/incidence of sickle cell disease in Zambia is not known and therefore the burden of this disease remains unknown. If, however, it is postulated that the prevalence of the sickle cell trait is 18 percent as Barclay had found…
How is sickle cell disease (SCD) diagnosed?
A blood test can show if you have SCD or sickle cell trait. Zambia recently launched a newborns screening program at ADH and UTH for early diagnosis and starting the treatment at an early age which can lessen the complications…
OUR TEAM
Mrs Sylvia .B.Mwansa Non Executive Chairperson
Mrs Agnes Nsofwa Executive Director
Ms Lombe Nkunde Company Secretary & Kitwe Representative
Mrs Mary Mukuka Sondashi Director Treasury & Ndola Representative
Ms Tamara Sakala Stossel Grants Advisor
Ms Bernadette Sandhya Moraes Media & Publicity & Kawambwa Representative
Ms Sepho Lisulo Grants Coordinator & Chibombo Representative
Dr Catherine Chunda Liyoka Advisor – Administrative & Scientific Affairs
Dr Uziah Chirwa Advisor – Scientific Affairs & Education
Legal Advisors K. Mwale & Company
Our Annual Events
Country-Wide Community Outreach Programs
Patient / Caregivers Workshop
ZNSAVA Fundraising Dinner / Organisation Launch
Music Concert For Sickle Cell (Blood Donation / Education Awareness / Fundraising
Testimonials
